My name is Lisa Maria Datcher. I am a NOBLE
member and I am seeking help in
supporting a very important cause and that is
LUPUS AWARENESS. I ask that all of the
chapters of NOBLE participate in this
cause by organizing people who have never
heard of this devastating disease; a disease
that affects an estimated 1.5 million
Americans where 90% are women.
I was diagnosed with LUPUS SLE in 1992 and I
have been through a myriad of changes both
personally and professionally. It took some
time for me to adjust but I finally decided
not to allow this disease to take over my
life. I formed an on-line support group for
others to connect, share and support one
another. Over the years, I have received
many emails from members and those who also
have LUPUS thanking me for sharing my
personal story and it is these emails that
give me strength to keep fighting for our
voices to be heard.
What is LUPUS?
LUPUS is an autoimmune
disease, more specifically, a chronic
inflammatory disease that occurs when your
body's immune system attacks your own tissues
and organs. Inflammation caused by LUPUS can
affect many different body systems, including
your joints, skin, kidneys, blood cells,
heart, lungs and brain. LUPUS affects people
of all ages, including children, but it most
often strikes people when they are between
the ages of 15 and 45. According to the
National Institutes of Health, LUPUS is three
times more common among African American
women than among Caucasian women, and is also
more common in women of Hispanic, Asian, and
Native American descent. LUPUS is by far the
leading cause of death among young women with
autoimmune diseases.
How prevalent is LUPUS?
The risk
of heart
attacks, stroke, kidney failure, and
osteoporosis is much higher in people with
LUPUS than in the general population. The
number of people with LUPUS in the U.S. has
been estimated to range from at least 270,000
to more than one million. It is difficult to
estimate how many people have LUPUS because
its symptoms vary widely and can come and go,
its onset is hard to pinpoint, and diagnosis
can be elusive. There is no known cure for
LUPUS at this time.
Why do you do this?
For the past
several
years, I have made arduous attempts to help
promote LUPUS Awareness locally and
nationally because still in 2008, there are
so many people who have never heard of this
devastating disease; a disease that affects
an estimated 1.5 million Americans where 90%
are women. While some progress has been
made, LUPUS still does not get the attention
as AIDS, Cancer and Diabetes yet this disease
for many is debilitating and often fatal.
LUPUS is known as the great imitator and
while new treatment options have been
initiated, many medical professionals still
find difficulty in diagnosing and treating
this disease. This is why it is so very
critical that adequate funding is available
for continued research so that a cure can be
found.
How can I help?
Support the "WALK
WITH US TO
CURE LUPUS WALKATHON"
For the Washington Metropolitan Area, the
dates are:
-
May 3, 2008, at Rash Field, Inner Harbor
located in Baltimore, Maryland
-
November 2, 2008, at the National Mall,
Capitol Reflecting Pool located in
Washington, D.C.
The start time for both events is 10:00 a.m.
Please support this very important campaign
by registering to walk, making an online
donation.
You can also help by collecting donations
from friends, co-workers and social
organizations you are affiliated with by
using the attached pledge form.
You may also send donations by check directly
to the Alliance for LUPUS Research, 28 W.
44th Street, Suite 501, New York, NY 10036.
Please be sure to include my participant
number on the memo line of any check donation.
-
DC-510000 for (Washington, DC)
-
MDB-400182 for (Baltimore, MD)
Donations are tax deductible - the TAX ID for
ALR is 58-2492929.